{"id":6154,"date":"2026-03-06T15:17:17","date_gmt":"2026-03-06T14:17:17","guid":{"rendered":"https:\/\/ela-asso.be\/?p=6154"},"modified":"2026-03-06T15:47:26","modified_gmt":"2026-03-06T14:47:26","slug":"ela-belgique-a-la-television","status":"publish","type":"post","link":"https:\/\/ela-asso.be\/uk\/ela-belgique-a-la-television\/","title":{"rendered":""},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"6154\" class=\"elementor elementor-6154\" data-elementor-post-type=\"post\">\n\t\t\t\t<div class=\"elementor-element elementor-element-40db69c1 e-flex e-con-boxed e-con e-parent\" data-id=\"40db69c1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-1a136836 elementor-widget elementor-widget-text-editor\" data-id=\"1a136836\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>[:fr]<\/p>\n<p><\/p>\n<p>ELA Belgique a eu l\u2019honneur de participer \u00e0 un reportage diffus\u00e9 sur la RTBF, d\u00e9di\u00e9 aux leucodystrophies et aux r\u00e9alit\u00e9s v\u00e9cues par les familles touch\u00e9es par ces maladies rares. le reportage met en avant le <strong>t\u00e9moignage direct d\u2019une famille<\/strong>, qui partage son exp\u00e9rience avec courage et sinc\u00e9rit\u00e9.<\/p>\n<p><\/p>\n<p>Cette intervention souligne l\u2019importance du <strong>d\u00e9pistage n\u00e9onatal<\/strong> et de la sensibilisation aux maladies rares. Notre pr\u00e9sident, <strong>Ga\u00ebl de Miomandre<\/strong>, remercie chaleureusement la famille pour son t\u00e9moignage et la RTBF pour la diffusion de ce reportage, essentiel pour faire conna\u00eetre les d\u00e9fis rencontr\u00e9s par les familles touch\u00e9es par les leucodystrophies.<\/p>\n<p><\/p>\n<p>Ensemble, continuons \u00e0 faire entendre la voix d\u2019ELA Belgique et \u00e0 mobiliser le public autour de la lutte contre les leucodystrophies.<br \/><br \/><a href=\"https:\/\/auvio.rtbf.be\/media\/journal-televise-sujet-par-sujet-maladies-rares-un-nouveau-plan-pour-un-diagnostic-plus-rapide-3443289\">https:\/\/auvio.rtbf.be\/media\/journal-televise-sujet-par-sujet-maladies-rares-un-nouveau-plan-pour-un-diagnostic-plus-rapide-3443289<\/a><\/p>\n<p><\/p>\n<p><\/p>\n<p>[:]<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-02fc60e e-flex e-con-boxed e-con e-parent\" data-id=\"02fc60e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-47b4567 elementor-widget elementor-widget-image\" data-id=\"47b4567\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/auvio.rtbf.be\/media\/journal-televise-sujet-par-sujet-maladies-rares-un-nouveau-plan-pour-un-diagnostic-plus-rapide-3443289\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"395\" src=\"https:\/\/ela-asso.be\/wp-content\/uploads\/2026\/03\/Capture-decran-2026-03-06-a-15.41.36-1024x506.png\" class=\"attachment-large size-large wp-image-6176\" alt=\"\" srcset=\"https:\/\/ela-asso.be\/wp-content\/uploads\/2026\/03\/Capture-decran-2026-03-06-a-15.41.36-1024x506.png 1024w, https:\/\/ela-asso.be\/wp-content\/uploads\/2026\/03\/Capture-decran-2026-03-06-a-15.41.36-300x148.png 300w, https:\/\/ela-asso.be\/wp-content\/uploads\/2026\/03\/Capture-decran-2026-03-06-a-15.41.36-768x379.png 768w, https:\/\/ela-asso.be\/wp-content\/uploads\/2026\/03\/Capture-decran-2026-03-06-a-15.41.36-600x296.png 600w, https:\/\/ela-asso.be\/wp-content\/uploads\/2026\/03\/Capture-decran-2026-03-06-a-15.41.36.png 1182w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-6154","post","type-post","status-publish","format-standard","hentry","category-presse-info"],"_links":{"self":[{"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/posts\/6154","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/comments?post=6154"}],"version-history":[{"count":1,"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/posts\/6154\/revisions"}],"predecessor-version":[{"id":6190,"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/posts\/6154\/revisions\/6190"}],"wp:attachment":[{"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/media?parent=6154"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/categories?post=6154"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ela-asso.be\/uk\/wp-json\/wp\/v2\/tags?post=6154"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}